*CFP* “COMMUNICATING RARE DISEASES AND DISORDERS IN THE DIGITAL AGE”, BOOK CHAPTER

A primary concern of rare diseases diagnosis is the lack of accurate information that, consequently, may lead to its delays, inaccurate treatments or rehabilitation interventions and social consequences. Although attention has been drawn to rare diseases with the Orphan Drug Act of 1983 in order to encourage pharmacology to develop new drugs, there is still lack of patients’ tracking and information about the diseases’ causes and incidence. 

Health communication continues to be one-way and rely heavily on the expertise from the health professional/practitioner and in such a broad spectrum of rare diseases, patients may find it hard to obtain timely information, accurate diagnosis, appropriate treatments and surgeries, medication or/and psychological counseling in their own countries. The use of Information and Communication Technologies open up avenues for future research on health communication, pathophysiology, innovative provider-patient mediated interactions, rare diseases initiatives, media and health campaigns, biostatistics and health monitoring.

Objective

The aim of this book is to provide theoretical and empirical research about the use of computer-mediated communication in rare diseases and disorders. It differs from other published books as it is trans disciplinary, bringing to the fore current advances in health communication, computer science and epidemiology. In addition, the book covers the following trends and important issues in health-related communication and disease management: the use of social media and awareness to rare diseases, blockchain in rare disease data and its record management, computer-assisted aided diagnosis, ethics, media coverage, biostatistics and health monitoring.

Target Audience

The target audience of this book will be students, researchers, and practitioners with interests in health communication, rare diseases, technology-enabled health, epidemiology, information visualization, biostatistics and computer-mediated communication and marketing. As the book addresses health computer-mediated communication aspects and disease management, it will be beneficial to such stakeholders as physicians, patients, researchers, health professionals and practitioners, caregivers and decision-makers.

Recommended Topics

• Social media and awareness to rare diseases
• Blockchain in Rare Diseases Data
• Managing eHealth open data and Rare Diseases Records
• Online communities, Sociometry and Rare diseases support
• Cases of Rare Diseases Communication Using Digital Technologies
• Computer-assisted aided diagnosis of rare diseases
• Digital technology and epidemiology of rare diseases
• Ethics in the use of ICT in rare diseases
• Communication and legislation in rare diseases and orphan medicines
• Sociotechnology and rare diseases
• Media coverage about different types of rare diseases
• Communication of rare diseases throughout time
• Health computer-mediated communities and rare diseases
• Media campaigns and the drug-oriented market in rare diseases
• Statistics and data about the prevalence of rare diseases
• Patient experiences and stories shared in the media
• Health monitoring and disease management through digital devices

Submission Procedure

Researchers and practitioners are invited to submit on or before February 9, 2019, a chapter proposal of 1,000 to 2,000 words clearly explaining the mission and concerns of his or her proposed chapter. Authors will be notified by February 14, 2019 about the status of their proposals and sent chapter guidelines. Full chapters are expected to be submitted by March 16, 2019, and all interested authors must consult the guidelines for manuscript submissions prior to submission. All submitted chapters will be reviewed on a double-blind review basis. Contributors may also be requested to serve as reviewers for this project.

Note: There are no submission or acceptance fees for manuscripts submitted to this book publication, Trust in Knowledge Management and Systems in Organizations. All manuscripts are accepted based on a double-blind peer review editorial process.

All proposals should be submitted through the eEditorial Discovery®TM online submission manager.

Publisher

This book is scheduled to be published by IGI Global (formerly Idea Group Inc.), publisher of the "Information Science Reference" (formerly Idea Group Reference), "Medical Information Science Reference," "Business Science Reference," and "Engineering Science Reference" imprints. Additional information regarding the publisher. This publication is anticipated to be released in 2020.

Important Dates

March 20, 2019: Full Chapter Submission

April 15, 2019: Review Results Returned

May 15, 2019: Final Acceptance Notification

May 30, 2015: Final Chapter Submission

  

Inquiries

Sónia Oliveira

CICECO, University of Aveiro, Portugal

sonia.oliveira@ua.pt

Liliana Vale Costa

DigiMedia, University of Aveiro, Portugal

lilianavale@ua.pt